The Promise of Type 1 Research

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  • Kathy McGrath

    James, I agree with you. for the past 33 years I have worked hard to take care of myself with Type 1 diabetes. I am basically complication free. I want to know what studies can “healthy” type 1 diabetics participate in? Don’t diabetes studies need some healthy long term type 1 diabetics?

    Why do studies only include those who have been diabetic for less than 3 months or those who are death’s door? There are many of us who have done all of the right things for decades and prove the point everyday that contentious adherence to a “diabetic lifestyle” really does work!

  • muirland

    I have been hearing for most of the 57 yrs. I have been shooting insulin about the soon to-be cure. My resent A1c was 5.7.
    If you could cure any diabetic’s gender, age group, or lengrt of timw w/desesae, you would do so. You would not be asking what group we prefer. Cure any one segment, and the remainder will quickly follow.
    Ladies and gentleman, does,”Send money”, not sound familiar to one and all.
    I have been reading and hearing this for will over 50 years. So far, diabetics have a better glucose testing system, smaller syringes, but used more frequently, better insulins, and possible better overall control. The insulin pump is easier but not much better. The Continuous Glucose Monitor (CGM)will be an outstanding improvement for instead of 4-8 testing moments in a day your glucose is monitored every 5 mins. 24/7.
    An alarm sounds at the start of highs and lows (your setting)which gives u time to correct & avoid. Insurance companies, and especially Medicre don’t cover expense. This is where your money should be spent.

  • muirland

    Interested in avoiding dangerous highs and lows, this tech. is available, but we must get Insurance to cover expense of the Continous Glucose Monitor (CGM), as they already do with the insulin pump.
    The CGM CAN DO FAR, FAR, MORE GOOD, AS YOUR ENDO. WILL AFFIRM.

  • muirland

    Medical waivers are not worth the paper they are written on. People sign these for whatever reason they are admitted to the hospital, always.
    WHY??
    Their legal staff has shown there are 18% fewer civil cases with this signed document.
    When you start a civil suit this waiver is immediately dismissed because your forced to sign in order to be admitted. This makes waiver non-binding.
    Been there.

  • Marie T Spadafore

    I am the mother of a 46-year old male who has type II diabetes which he acquired after losing 40 pounds within a one-year period. He has gotten his A1c down to 6.8 and was told by his doctor that if he got it down to 5 or below, he would have his medication lowered or some discontinued.

    I volunteered to donate my stem cells to help him if that could be done. I am 71 years of age and would be more than happy to do so. Is there any other way he can be helped at this time. I was told that he is not that bad off that the performance of a stem cell implantation would not be done.

    Would appreciate a response to this dilema.

    Sincerely,

    A worried mother – Marie Spadafore

  • James D.Taylor

    OK-
    Don’t want to sound like a whiner, but after more than 45 yrs of waiting for the “cure” that was “right around the corner” I think I’m allowed my my gripe.

    Why is it that pharma-studies (especially those involving stem cells) always want someone who has “just been diagnosed” when someone like me who has endured with Type 1 diabetes for well over four decades is continually rejected from studies?

    Despite the fact that I am relatively complication free and willing to sign any decree or waiver of liability necessary for study participation, I am regularly excluded from participation in trials that might possibly provide a breakthrough in treatment.

    At this point I feel like I’m being relegated to the “scrap bin” as some sort of write-off, where I can eventually hope to be placed on a waiting list for a kidney/pancreas transplant once I’m at deaths door should one be available!

    If someone would care to actually provide informed response to this inquiry with a factual explanation I’d greatly appreciate it.

  • Judy in Kentucky

    I have Type 2 Diabetes! I should also be included in any RESEARCH that is provided! Not just Type 1!!!!!!!!!!!!!!!!! Thanks Judy

  • BillR

    Some of these comments seem to NOT realize that after a period of Type 1 diabetes your Beta Cells are GONE. These trials are aimed at arresting the destruction of remaining beta Cells shortly after diagnosis. Good luck to these trials. We long-term Type 1’s will have to wait for some way to restore our Beta Cells.

  • Ben B

    I have type 1 and use a Medtronic pump.

    I am interested in buying, at my expense, a Continuous Glucose Monitor and would like feed back from users.

    Can I reduce some finger sticks?

    Is it accurate?

    Any information would be grateful.

    Thank you.

  • Friz

    I have had Type I Diabetes for 35 years. My A1c is not as low as those mentioned here and I have suffered from some diabetes-related complications. However, unlike many of those who have written, I am happy to see advances made in diabetes treatment (ANY treatment). If these advances mean someone else doesn’t have to go through what each of us has gone through, shouldn’t we all be happy for those who will benefit? I know I am! Just the thought of a young person going from the devastating diagnosis of Type I Diabetes to being told there may be a cure (a CURE, really, not strictly treatment, but a cure? wow, to my knowledge DM and a cure for anyone have never been linked together before now).

    So, how about a little more appreciation and a little less selfishness.

  • Lisa Young

    In response to the latest article on clinical trials,i thought that patients with type 1 diabetes, who have had the disease for a long period of time, would benefit more, and possibly save
    themselves from the horrible effects of the disease. I would gladly volunter for any trial
    but i have had diabetes for 29 years. Where do i fit in?

  • Jason M

    I read these posts and feel lucky. I am 33 yrs old and have had IDDM type 1 for 18 years. Just last week I got my 4th pump from medtronic and this one came with the CGM System. Mine luckily was covered 100% by insurance. It has not decreased my finger sticks in fact just the opposite I now check my sugar 5-8 times a day. But I am checking at the right times now and can see the trends that my body has. As far as accuracy, it is ok but has been at times 20% off of the finger stick number all depends on how much insulin is running through your system at the time.

    Ben hope that helps some I’ll let you all know how it goes if you want.

  • Clint

    For the person whining that type 2 diabetics should be involved in type 1 studies, get over it. Far and away the money and research is being poured into Type II now that fat aunt sally and rich old Joe have it. You have far more going on in type II because of who has it, leave the blameless type 1 diabetics alone.