Get tips and insights from health-care professionals and people with diabetes, share your thoughts, and ask questions on our blog.

Go to Blog Archives

Sign up for our weekly e-mail newsletter and receive a FREE GIFT! Enter your e-mail below.



 

Learn more
Sample e-newsletter

Learn more about diabetes

Links to help you learn more about diabetes.

Ask a diabetes expert
Other diabetes resources
Browse article topics


Print |
Text Size:
A

A

A

Eric Lagergren, Newly Diagnosed with Type 1 Diabetes
Nov 20, 2008

The Stir, or Lack Thereof, Over A Cure

Eric Lagergren

Here's how I find out there’s a new potential cure for Type 1 diabetes (emphasis here at the outset of this blog post on the word potential). Tuesday morning, my wife is on the couch reading the news feed on her iPhone and comes across Kerri Morrone Sparling's latest entry in her "Six Until Me" blog (it’s a blog most of you probably know, and if not, check it out!).

Kathryn asks me if I've heard of this new potential cure for Type 1 diabetes. I tell her no, and so she gives me the gist of Kerri's blog entry. On Monday evening, NBC's Brian Williams introduced a news segment about medical research that's creating "quite a bit of excitement," research that could "hold the key to putting [Type 1] diabetes patients into permanent remission."

Here's the segment:

My reaction to the blog summary? Not much. I treated this news with the same sort of emotional response that I'd give news of a cure to a disease that I do not have, or to some other revolutionary medical breakthrough that would have very little effect on my life: "That's nice."

Over the past few days, I've been wondering Why? Why did I react this way? Why do I react this way when there's good news about a potential breakthrough in Type 1 diabetes treatment?

I've been living with Type 1 for a little less than two years now, and in that short amount of time I've been forwarded news stories and come across headlines and magazine articles about breakthroughs, potential cures, and on and on. Every time I meet information about the potential for a cure, that info passes by, and I pay it about as much attention as I would a bus with a colorful advertisement plastered on its side: Once it's out of my view, I don't think about it.

There are quick, easy ways to explain my nonchalance when I'm confronted with news of a potential cure for Type 1 diabetes: I don't want to get my hopes up; even if this cure is possible, whatever would happen would happen years and years from now; I'm dubious, in the minor conspiracy theorist sort of way, that drug companies are making way too much money off of people with diabetes, and what would a cure do to that, huh? (On that last one: I'm really not a conspiracy theorist, but any time cures for cancer, HIV/AIDS, or any other disease that makes Big Pharma billions of dollars is talked about, there's always someone who brings up that potentiality.)

There's also an answer that I'm sure I could write a chapter or two about. Umm, how to condense this into a short paragraph? Okay, here it is: I've had Type 1 diabetes for less than two years. People out there—some of you, actually—have been living with this condition for decades, for most of your lives. My excitement over news such as this latest "cure" breakthrough might probably seem naïve. "Been there, done that," y'all might say. I mean, my newbie status (relatively speaking) in the exclusive club that is Type 1 probably plays a part in my hoping too much for that cure. It could happen. It might. But it might not happen.

Do I salivate over every latest research report and spend my days excited over every story about the next thing that'll cure Type 1? Shall I live my life as an overbearing hyperoptimist who thinks "this is it; this time it's for real"?

It's not in my schema to do so.

This news about imatinib (brand name Gleevec) and sunitinib (Sutent) arresting Type 1 diabetes in mice, though, has given me something to think about on my drive into work and other times I'm being mildly introspective — if not about the potential cure itself, then about why it is I react the way I do to these stories.

Until there's a cure, there isn't a cure.

POST A COMMENT        E-MAIL A FRIEND


I guess if I was a laboratory mouse with a mammary tumor I would be doing back flips in my cage BUT I'm not. So what else is new?

Posted by: Florian | Nov 26, 2008 02:49 PM

I agree with you, especially your statement that the drug companies are making to much money on of us. Another thing that is disgusting are the daily tv ads and and advertisments on diabetes.

Posted by: Fritz Daviscourt | Nov 26, 2008 03:20 PM

I can understand your lack of excitement. I have been a type I diabetic for 26 years. At the onset of my disease, ny doctor told me I must take good care of myself and get no complications, since diabetes was going to be cured within 5-7 years. Since then, all the touted "almost cures" and "major breakthroughs" have all come to nothing. It is a rather disheartening and leads one to be skeptical about each new promise of an imminent cure.

Posted by: Vicki Blakeman | Nov 27, 2008 01:46 AM

Medical reseach is, among other things, a business, and that's been one of the drivers of progress for a long time. There have obviously been abuses, but the model is more successful than say, State Medicine in which doctors make the same as teachers and a government pays for everything. When you think of Big Drug suppression, ask yourself, ok, what is the better model? There could well be one but don't base it on sheer altuism, the real world runs on energy and money is energy.

On hesitancy to hope that this cure is THE cure, it is understandable. Part of how we survive as diabetics is rooted in our acceptance of our role to manage it for the rest of our lives. From that we build attitudes, practices, routines. It works for us. To seriously think that "maybe by next year..." shifts the significance of our routines and tends to make them unendurable, like holding your breath under water. Or, to switch metaphors, we stop being marathoners and become sprinters running a marathon. Eventually, we collapse in disillusionment. The trick is to keep on keeping on and still keep the faith that a cure is coming. Just don't wait out at the bus stop for it.

Peter

Posted by: Peter Mead | Nov 27, 2008 12:21 PM

One more thing: great time to be a mouse!

Posted by: Peter Mead | Nov 27, 2008 12:22 PM

I suppose as a type 2 diabetic (who once put myself into remission and then squandered my gains) I respond in similar ways. My touchstone for interest, I think, is now whether there's anything I can do that might make a difference in improving my condition, and as you point out, this kind of drug-oriented flackery doesn't offer any opportunities for that.

Oddly enough, similarly astonishing results have been reported recently with capsaicin injections: http://snipurl.com/capsaicinfordiabetes [www_google_com]
I've been rather more excited about that. It gives me trials to watch out for soon, and meanwhile, although I'm not going to be trying to inject capsaicin into my pancreas at home, I can enjoy the "couldn't hurt" effect of injecting a bit more into my diet.

Posted by: Michael.Massing | Nov 29, 2008 10:19 PM

Dear Readers.

Yes it is true that Canadian researchers have reversed diabetes in mice by blocking the nerve transmissions from the pancreas. It would be remarquable if the body's immune system destroys the pancreas because of a false alarm and that cuting the signal wire would stop or reverse the disease.

I am not covinced that big business is the best for medical progress. As we have clearly seen on Wall Street big Capitalism leads to big evil that sunsequently needs socialist action (i.e. tax payer dollars) to fix. If it can be fixed.

In Canada as in the USA. Medical Doctors are treated as Emperors or at least Royalty and are payed the top of any professional scale. The schools only choose the type A super egoed personalities, in some provinces they have to be olympic class atheletes as well. These people as clinicians show very little compassion to their patients and are precisely the type of people that you do not want in research.

The Biochemists that produce most of the progress are often not paid that much more than teachers. They have less flamboyent personalities.

Posted by: CalgaryDiabetic | Dec 05, 2008 02:43 PM

If you are seeing this, then you have style sheets turned off. Please ignore the first form (below). This form is hidden as a makeshift protection to stop spam-bots. They will see this form and post to it (doing nothing) and ignore the second (real) form.

Below is the real form. If you're posting comments, please use the below form. Thank you.


Username:

will be displayed

Email Address:

will not be displayed

Check this box to receive our FREE newsletter.


Comments

Bold | Italic | Quote | Paragraph | Link

Note: All comments are moderated and there may be a delay in the publication of your comment. Please be on-topic and appropriate. Do not disclose personal information. For more information, please read our Terms and Conditions.

Disclaimer of Medical Advice: You understand that the blog posts and comments to such blog posts (whether posted by us, our agents or bloggers, or by users) do not constitute medical advice or recommendation of any kind, and you should not rely on any information contained in such posts or comments to replace consultations with your qualified health care professionals to meet your individual needs. The opinions and other information contained in the blog posts and comments do not reflect the opinions or positions of the Site Proprietor.

Small Changes

Which small changes will you try to implement in your diabetes-care routine this year?

Click here to participate.

In the current Diabetes Self-Management November/December 2008 Issue Diabetes Self-Management November/December 2008 Issue

New Tools 2008

Read up on the latest meters, pumps, and other tools for managing diabetes.

Making Exercise More Fun

This article suggests strategies to change your attitude toward exercise.

Quiz: How Much Do You Know About Athlete’s Foot?

This common fungal disease can happen to anyone, not just athletes.

Complete table of contents
Get a FREE ISSUE
Subscription questions

With Meals and Menus you can whip up delicious, healthy meals every day!