NATIONAL FAMILY CAREGIVERS ASSOCIATION
10400 Connecticut Avenue, Suite 500
Kensington, MD 20895-3944
The National Family Caregivers Association conducts research on caregiving and, through its Web site, offers information and educational materials. By joining the group’s “Family Caregiver Community,” caregivers get a quarterly newsletter and a monthly e-newsletter, as well as access to an online educational library and a pen pal program for caregivers.
FAMILY CAREGIVER ALLIANCE
180 Montgomery Street, Suite 1100
San Francisco, CA 94104
The Family Caregiver Alliance is a public advocacy group for caregivers. It publishes fact sheets on caregiving (available online) and also has more informal “Hot Topic” guides, as well as online discussion groups. The Web site’s Family Care Navigator has a state-by-state list of resources available to caregivers; it also lists resources by topic and has answers to common questions.
NATIONAL ALLIANCE FOR CAREGIVING
4720 Montgomery Lane, 5th Floor
Bethesda, MD 20814
This group represents a coalition of national caregiving organizations and other groups related to caregiving. It has both research-based publications and brochures for caregivers available, including one in Spanish.
Web sites/online tools
CareCommunity offers information on caregiving through articles, online booklets, and an “Ask an Expert” feature. It also lets caregivers share stories, concerns, and advice through discussion forums and blogs (which any member of the site can write). Registration for the site is free.
This site has information on numerous aspects of eldercare, including home care, fiscal and legal matters, and disease-specific information. Many topics are covered in a simple question-and-answer format, and articles tend to be very brief and specific.
This section of AARP’s Web site has articles, personal stories, a Q&A column, and a Tool Kit that includes organizational materials, tips for dealing with employers, information on long-distance caregiving, and tips on what benefits — both private and public — are available to caregivers.
This collection of personal blogs also has a guide for expectant caregivers (”The Caregiving Years”), tips, FAQ’s, and quizzes.
MEDLINE PLUS: CAREGIVERS
This Web page from the National Institutes of Health is a list of links to articles and guides on other sites. The articles cover a wide range of topics, from caregiver stress, to acting in an emergency, to daily dental care, and much more.
MEDICARE CAREGIVER INFORMATION
This Web site focuses specifically on how caregivers can make the most of Medicare for their care recipients. It has a comprehensive guide to Medicare for caregivers, an online video of a panel discussion on connecting caregivers to Medicare, and numerous articles.