Joining a support group can help you adjust to a gluten-free diet and give you the satisfaction of knowing you are contributing to celiac disease research. Benefits of membership may include newsletters, recipes, online message boards, updates from food manufacturers, and referrals to health-care professionals in your area. You do not have to be a member to access information from most groups’ Web sites, and most also offer free pamphlets that can be ordered by phone or via the Internet.
CELIAC SPRUE ASSOCIATION (CSA)/USA, INC.
P.O. Box 31700
Omaha, NE 68131-0700
The Celiac Sprue Association has a network of 80 chapters in the United States that provide educational services to people with celiac disease and their families. Membership includes a quarterly newsletter, Lifeline, and a copy of the group’s handbook, On the Celiac Condition. Some recipes and information sheets are posted on the Web site; additional pamphlets, videotapes, audiotapes, and cookbooks can be ordered online or by telephone.
CELIAC DISEASE FOUNDATION
13251 Ventura Boulevard, Suite 1
Studio City, CA, 91604-1838
The Celiac Disease Foundation Web site offers general information about celiac disease, contact information for support groups in California and some other Western states, a list of recommended books, and details on current clinical trials. Benefits of the annual membership fee include a quarterly newsletter.
GLUTEN INTOLERANCE GROUP OF NORTH AMERICA
15110 10th Avenue SW, Suite A
Seattle, WA 98166-1820
A Seattle-based nonprofit organization, the Gluten Intolerance Group regularly holds educational meetings in the Seattle area and welcomes volunteer support. The group also hosts a summer camp for kids with celiac disease. A number of gluten-free cookbooks can be ordered from the Web site; users must register for access to online information packets.
CANADIAN CELIAC ASSOCIATION
5170 Dixie Road, Suite 204
Mississauga, Ontario L4W 1E3
The Web site offers basic information on celiac disease, dermatitis herpetiformis, and the essentials of a gluten-free diet. It also posts up-to-date alerts about Canadian foods found to contain gluten and provides links to the Canadian Food Inspection Agency and to Canadian and U.S. food manufacturers and celiac disease organizations. Select articles from Celiac News, a newsletter published three times a year, are posted on the Web site, and books, cookbooks, pamphlets, and audiotapes can be ordered online. Members get discounted prices on resource materials.