Diabetes Self-Management Blog

In an ideal world, we would all have friends and family members who would provide the support we needed whenever we needed it. In an ideal world, we would have no need for self-help groups or support groups. The reality, however, is that at times most of us need a type of support that requires acceptance from others who are struggling with a similar issue.

These groups are not therapy groups, although they can be therapeutic. They are also not necessarily educational groups, although some use education as a tool to attract members. The type of groups we are talking about are emotional support groups, which can offer ideas for effective ways to deal with the circumstances people face.

A comment I received last week on a previous blog post (“Support, What Do You Think It’s Good For?”) identified a sense of frustration about the lack of resources available for forming a group for people facing anxiety, depression, and living with diabetes in St. Louis. The reader asked her health-care provider about starting a group and received the response that their wouldn’t be any interest. But I can tell you from my experience over the last 25 years that people are interested in having a place where they can come and talk about their struggles with these issues. People have a need to be in an environment that is nonjudgmental and supportive, where they can feel encouraged to go another day, week, or month and know that someone else cares about how they are doing.

Here’s the bind: Most groups need a leader, someone to coordinate meetings, and a place where meetings can be held. Coming up with these elements takes time, money, and a building. Most of the time, this responsibility ends up being delegated to a diabetes educator who already works full-time and often doesn’t necessarily have the skills to facilitate a group that focuses on emotional issues. The result is that the group usually shifts from being an emotional support group to an educational group, where you are not likely to get what you are really looking for. These groups also have a tendency to wax and wane in terms of how many people attend, so often people lose interest and the group ends. This is not a message about the value of the group, but about the nature of open-ended educational groups.

There are also groups that are more specific to the issues the reader mentioned in her comment, but these are usually therapy groups led by a mental health therapist, and they have a cost. They are also usually time-limited, meaning that they will end after a certain period of time. This, too, is not exactly what it sounds like people who want a support group are looking for.

The dilemma is clear: They don’t make what you want, but what you want is a good idea and someone should make it. There are a few programs in the country where you can get something like the support group the reader is looking for. Dr. William Polonsky’s Diabetes Behavioral Institute is starting some programs like this in San Diego. The International Diabetes Center in Minneapolis is also offering support groups, and some hospitals offer groups, but most are educational rather than emotional support.

In St. Louis, you might contact Washington University and their diabetes program to ask what they offer. There is a program called The Diabetes Initiative that may have some possibilities .

The other option may be to do what the reader was suggesting, which is to get some help from someone to start your own group. You could contact a local university and ask them about graduate students in either psychology or social work who are interested in gaining extra experience in facilitating a group. University students may have enough training to help in this regard and often have good energy for it; in addition, they may be supervised by a professor who can help deal with any problems. Then, get the word out to diabetes educators around the city so they can send some people your way. Lastly, a church is likely to have space that you could discuss using, or a local clinic might possibly be willing to spare some space in the evening.

Get creative—there is no magic to solving this problem, but if your energy is good, the best support group is the one you create for yourself. I’d be glad to help if you have more questions.

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Comments
  1. Joe - thank you for the info on emotional support. I hear a great deal from those with diabetes who are asking and can not find emotional support. I will pass on the info that you have provided.
    My View: Emotional support is very important to some people in this fast-paced world moving at warb speed. However, I fully support the educational opportunities available. I have found that educating myself over the past 49 years with Type I has helped me to avoid emotional issues. Since I better understand what is occurring within my metabolic system, I can make adjustments accordingly. A perfect world would give us information on education and emotional support to reach the full spectrum of needs for our population

    Posted by Joan |
  2. Group therapy?

    Thats crap!

    Posted by sweetness |

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Emotional Health
Righteous Anger! (08/21/14)
Diabetes Distress and Depression (07/09/14)
What Is Hardest About Diabetes for You? (05/28/14)
Diabetes Friends (05/06/14)

 

 

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